International Society for the Study of Vascular Anomalies
Newsletter Vol 10 - No 4 | August 2026
ISSVA President's Message
Dear ISSVA Members,
I hope you have had a restful and enjoyable summer and have found time to recharge with family, friends, and colleagues. As we move into the busy months ahead, I am delighted to welcome you back and share updates on the exciting work taking place across our society.
Following the tremendous success of the 2026 ISSVA World Congress in Philadelphia, our committees, volunteers, and leadership teams have continued to build momentum around ISSVA's mission of advancing education, research, collaboration, and patient care in vascular anomalies. We remain grateful for the enthusiasm and engagement of our members around the world.
This fall, we are especially excited about our upcoming Debates & Updates Meeting, taking place in Dublin, Ireland, 5-7 May 2027, which will provide valuable opportunities for learning, discussion, and connection within our multidisciplinary community. I encourage all members to participate and help make this initiative a success.
In addition, work is well underway on board initiatives to enhance the ISSVA Classification, increase our outreach to vascular neuroscientists, and engage with our industry partners in ways which benefit the ISSVA community. These efforts reflect ISSVA's ongoing commitment to fostering innovation, supporting physicians, and improving outcomes for patients worldwide.
We are also pleased to share updates regarding ISSVA's online presence. The Communications Committee has been hard at work expanding our virtual presence to include Facebook, Instagram, LinkedIn, and X. Be sure to follow us for the latest updates from the Society. The dedication and expertise of our volunteers continue to strengthen our society and expand the opportunities available to our members.
As we look ahead, please keep the following important dates on your calendar:
- ISSVA Debates and Updates 2027 | 5-7 May 2027 | Dublin, Ireland
- ISSVA World Congress 2028 | 16-19 May 2028 | Reykjavík, Iceland
Thank you for your continued commitment to ISSVA and to the patients and families we serve. I look forward to working alongside you in the months ahead and to all that we will accomplish together as a global community.
With best regards,
Juan-Carlos Lopez-Gutierrez
President, ISSVA
Congress Recordings Available for Viewing or Purchase!
Access the 2026 World Congress Recordings
Attendees can now access the recordings for the 2026 ISSVA World Congress. Visit the recordings site and follow the instructions to access today.
Purchase Access to Recordings
If you wish to purchase access to the recordings, contact info@issva.org or visit the website to find pricing and payment information. Live and enduring CME credits are available.
Donate to the John B. Mulliken Education Fund
ISSVA Classification & Glossary
Issue Reporting
The ISSVA Classification and Glossary, updated in 2025, is a living document. We encourage your feedback for future iterations. Please submit any issues and/or feature requests for the ISSVA Classification System using the form below. Note: Names and emails are required in the form below, however, your information will not be shared publicly. These may be used to respond to your feedback directly by the Classification Working Group and/or ISSVA leadership.
2026 ISSVA Membership: Renew or Join Today!
If you haven't renewed your membership, or joined - now is the time to do so! ISSVA membership has many benefits, including early registration access to our Debates & Updates Meetings.
- Gain exposure through ISSVA's "Find a Specialist" and "Find a Vascular Anomalies Team" features online
- Engage in networking opportunities with other professionals involved in vascular anomalies
- Share your research and receive a discount to publish in the Journal of Vascular Anomalies (JoVA)
- Receive discounted rates to attend ISSVA's meeting and educational offerings
- Be an active member of the vascular anomalies community treating these diseases and improving the lives of patients globally
If you prefer to renew or join with a written invoice, please reach out to us at info@issva.org.
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JoVA is now indexed in the Directory of Open Access Journals (DOAJ): and moving towards Pubmed Central indexing.
Follow JoVA on X: @JOVAJournal
We invite you to read some of JoVA's most recent publications:
ISSVA 2025 Classification
- Updated Classification of Vascular Anomalies. A living document from the International Society for the Study of Vascular Anomalies Classification Group
Goldenberg, Dov; Vikkula, Miikka; Penington, Anthony; Blei, Francine; Schultze Kool, Leo; Wassef, Michel; Frieden, Ilona J.; ISSVA Vascular Anomalies Classification Group
Clinical Study (Prospective, Retrospective, Case Series)
- Hematologic Complications After Epiphysiodesis for Vascular Malformation-Related Leg-Length Discrepancy: A Retrospective Cohort Study
Beqo, Besiana P.; Thompson, Amanda; Spencer, Samantha A.; Liang, Marilyn G.; Shah, Tishi - Sirolimus Administration Does Not Affect Growth Parameters in Children with Vascular Anomalies Treated for 2 Years or More
Rao, Marisa; Simon, Jesline; Iacobas, Ionela - Early Sirolimus Therapy Combined With Sclerotherapy for the Management of Extensive Neonatal Cervicofacial Lymphatic Malformations: Clinical and MR-Volumetric Follow-up in a Series of 10 Patients
Fraissenon, Antoine; Fortin, Francis; Cabet, Sara; Frade, Fernanda; Bigorre, Michele; Guilhem, Alexandre; Belot, Alexandre; Viremouneix, Loic; Quere, Isabelle; Dunand, Olivier; Chauvel Picard, Julie; Morin, Gabriel; Canaud, Guillaume; Guibaud, Laurent
Case Report
- Somatic MAP2K1 Variant Driver in a Child With Rosai-Dorfman-Destombes Disease And Vascular Anomaly
Glasser, Chana L. MD; Bennett, James T. MD, PhD; El-Ali, Alexander MD; Forlenza, Christopher MD; Liu, Cynthia MD, PhD; Monteleone, Berrin MD; Thomas, Kristen MD; Blei, Francine MD - Interdisciplinary Management of an Intra-Articular Venous Malformation of the Left Knee in a Pediatric Patient
Velarde-Castillo, Mayra Citlalli; Cruz-Melendrez, Dayri Alejandra; Anaya-Ayala, Javier E.; Ramírezslas, Daniel Alberto; Navarro-Pérez, Julio Alberto; Celis-Jiménez, Alejandro
Contemporary Review
- Microcystic and Macrocystic Lymphatic Malformations: Distinct Genetics and Clinical Strategies
Kamireddy, Arun; Weiss, Clifford; Martini, Jeff; Kelly, Michael; Gnarra Buethe, Maria
Letter to the Editor
- Vascular Anomaly Network—Development and Implementation of a Novel Organization to Advance Care and Research for Vascular Anomalies
Bryan A. Sisk, Anna M. Kerr, Sally Cohen-Cutler, Alexandra J. Borst, Kristen M. Sanfilippo, Alexander Ushinsky, Nathan J. Schloemer, C. Matthew Hawkins, Sarah E. Sheppard, Rossana Sanchez-Russo, Moise L. Levy, Cassandra A. Ligh, Katie Brotherton, Shivangi Argade, Michael D. Fox, Frances A. Comer, Lauren Beauregard, Denise M. Adams
The Editorial staff of JOVA is issuing a Call for Papers. This peer reviewed, open access journal is dedicated to the discovery and report of the scientific investigation, diagnosis, and treatment of congenital and acquired human vascular lesions. JOVA is indexed in the Directory of Open Access Journals (DOAJ) and is available worldwide on Ovid®. Some manuscripts already have PubMed IDs.
We are accepting the following article types:
- Original Scientific Research (molecular, genetic, histologic)
- Original Clinical Studies (prospective, retrospective, case series)
- Contemporary Reviews
- Evidence based Reviews
- How I do it
- Case Reports
- Letter to the Editor
Submit today to ISSVA’s journal dedicated to Vascular Anomalies. Expedited review and publication!
Connect With Us
Message Boards: Read the latest messages or start a conversation online with other members - ISSVA Message Boards.
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Are we missing any meetings or items of interest?
If you are aware of an upcoming educational opportunity, meeting or other item of interest that should be included, please let us know at info@issva.org so we can review the item and, if appropriate, share it with our membership in our next newsletter.
