International Society for the Study of Vascular Anomalies
Newsletter Vol 5 - No 2 | July 2021

President's Message

Welcome to the new format of the ISSVA newsletter. In these difficult times it is more important than ever to keep up to date and we have decided to send a more concise and more frequent newsletter every two months.

Following on from our successful first Debates and Updates meeting, planning continues for the ISSVA Scientific Meeting which will be held in Vancouver from the 10th to the 13th May next year. We are committed to holding an in person meeting, and I encourage everyone who can to make the journey to catch up with friends and colleagues in beautiful Vancouver. We also recognise, however, that there are still funding challenges for many, and travel restrictions are likely to still be in place in parts of the world, so we are looking into online options for those who sadly can’t be there but need to know the latest in Vascular Anomalies. The meetings committee will work hard to create the best experience possible for both options. Further details will be announced as they are finalized.

We are continuing to develop our directory of multidisciplinary teams for the treatment of vascular anomalies, which will be live on the website soon. If your team has submitted its details and your center meets the listed criteria, they will be visible on the site. If you have not yet done so, it is not too late, the site will be regularly updated. The next phase of the project which will define the resources and expertise needed to be a center of excellence in the treatment of vascular anomalies will begin shortly.

Finally please keep checking the message boards on the ISSVA website for discussion on topics of interest, and follow us on Twitter for the latest updates and events.

Tony Penington

Journal of Vascular Anomalies (JoVA)

The Journal of Vascular Anomalies (JoVA), an online-only open access journal dedicated to the scientific investigation, diagnosis, and treatment of congenital and acquired human vascular lesions, will support ISSVA's mission to spread education to physicians, researchers, allied health, and other professionals interested in the field of Vascular Anomalies. JoVA's most recent publications are below:

We are currently accepting submissions of original scientific research (molecular, genetic, histologic); original clinical studies (prospective, retrospective, case series); contemporary reviews; evidence based reviews; how I do it?; case reports; and letters to the editor. Submit a Manuscript

ISSVA Meetings

2022 ISSVA World Congress (Vancouver): Please mark your calendar for 13-15 May 2022 to join us at the 2022 ISSVA World Congress (formerly known as the Workshop). Details will be shared via e-mail as they are finalized and will also be updated on the ISSVA World Congress 2022 (Vancouver) Website.

Membership Corner

Get to know: Dov Goldenberg! Each newsletter we plan to introduce you to a member of ISSVA and we're proud to start this series by introducing you to ISSVA's Scientific Committee chair, Prof Dov Goldenberg, from São Paulo, Brazil. Read the interview with Prof Goldenberg!

General Assembly Vote Results: Thank you to our members who participated in our General Assembly call and online vote. We are pleased to announce that all proposed new members and proposed changes to the Bylaws have been accepted.

Multidisciplinary Teams: Thank you to everyone who has already submitted your multidisciplinary team to us. Although the deadline has passed to submit your team, we are happy to receive additional team applications, although they may not be reviewed immediately. Submit Details of Your Multidisciplinary Team for listing on the ISSVA website.

Message Boards: Read new messages, including those on the new message board, "Glaucoma and CM around the eye" or start a conversation online with other members - ISSVA Message Boards.

Social Media: Follow ISSVA on Twitter @ISSVA_org

World of Vascular Anomalies

ISSVA feels it's important to unite the vascular anomalies community so we share with you, our members, the below events and changes in the field that are not organized or associated with ISSVA, but may be of interest to you.

Please note that the events and news items listed below do not indicate an endorsement or sponsorship of these events by ISSVA.

Educational Opportunities & Meetings

GEST 2021 Vascular Malformations Focus Day
A virtual event
14 August 2021
Learn More

5th World AVM Congress
New York, NY, United States
26-28 September 2021
Learn More

International Conference on Vascular Medicine and Pathogenesis of Vascular Anomalies
Beijing, P.R. of China
06-07 October 2021
Learn More

Vascular Malformations: From Fundamental Biology to Therapeutic Opportunities
Barcelona, Spain
06-08 October 2021
Learn More

International Scientific Meeting for PIK3CA Related Conditions
A virtual event
28-29 October 2021
Learn More

Other Items of Interest

Complex Lymphatic Anomalies Natural History Research Study: the Lymphangiomatosis & Gorham Disease Alliance (LGDA) is working with a company called Allstripes to recruit patients with Complex Lymphatic Anomalies (including Gorham Stout Disease, Generalized Lymphatic Anomaly, Kaposiform Lymphangiomatosis and Central Conducting Lymphatic Anomaly) for a natural history research study. Learn More

VT30-101 Clinical Trial: this topical gel, which is produced by Venthera, is intended to treat a subset of VM/LM cutaneous lesions. This clinical trial is taking place in North America and is posted on Learn More

Are we missing any meetings or items of interest?

If you are aware of an upcoming educational opportunity, meeting or other item of interest that should be included, please let us know at so we can review the item and, if appropriate, share it with our membership in our next newsletter.