International Society for the Study of Vascular Anomalies
Newsletter Vol 9 - No 4 | July 2025
ISSVA President's Message
Dear ISSVA Colleagues,
As I mentioned in my last message, the newly formed ISSVA Committees & Working Groups have begun their work, and we expect that progress will be made in the next half year. As we continue to learn and assess the needs of each group based on the feedback from members, the Board of Directors has recently approved a revised description for the Patient Support Committee:
Purpose:
The ISSVA Patient Support Committee serves as a collaborative bridge between the vascular anomaly patient community and medical professionals. Its mission is to enhance patient representation, engagement, and advocacy within ISSVA by identifying unmet needs, supporting educational initiatives, and advising on research and clinical priorities. Members of this committee are not representing specific groups, but the patient community as a whole.
Composition:
The committee is composed of both patient advocates and medical professionals, with a strong emphasis on patient leadership:
- 75% of members are patient advocates representing diverse patient organizations.
- 25% are medical professionals serving in an advisory capacity.
- The Chair and Co-Chair are appointed based on the guidelines set by the ISSVA board of directors, with input by the patient organizations.
Responsibilities:
- Advocacy & Outreach: Plan and oversee patient-focused events, webinars, and initiatives to raise awareness and improve care.
- Education: Collaborate with the ISSVA Education Committee to develop educational programming for patients and families.
- Strategic Advisement: Ensure the patient voice is central in ISSVA’s strategic priorities.
- Scientific Engagement: Contribute to the planning of ISSVA meetings and workshops to reflect patient-relevant themes.
- Liaison Role: Act as a conduit between the global patient community and ISSVA leadership, reporting on needs and opportunities.
We are eager to get this important committee off the ground. If you applied for this committee during the original Call for Committee Members, your application will be reviewed for acceptance.
General Assembly - 17 August 2025
Each year per the ISSVA Bylaws, a General Assembly of the membership is held to update everyone on the status of ISSVA's activities. This year, the General Assembly will take place virtually via Zoom on Sunday, 17 August. Please check your email for the information to join the meeting.
2026 ISSVA World Congress
The ISSVA 2026 World Congress will take place in Philadelphia, Pennsylvania, from 19-22 May 2026. Watch your email for notification about abstract submission deadlines in the coming weeks.
Enjoy the rest of your summer!
Warm regards,
Leo Schultze Kool
President, ISSVA
ISSVA Classification & Glossary
The ISSVA Classification and Glossary manuscript has been published before-print in JoVA. You may access online on the JoVA website or view on the ISSVA website with more information.
Copyright:
ISSVA Classification & Glossary for Vascular Anomalies by International Society for the Study of Vascular Anomalies (2025) is owned by ISSVA.
The ISSVA Classification & Glossary for Vascular Anomalies 2025 was developed and updated by the ISSVA Scientific Committee - Classification Group. This version of the ISSVA Classification system (Classification & Glossary) is owned and copyrighted by ISSVA. Non-commercial use and reproduction are permitted without prior approval (see citation note below). Permission must be obtained from ISSVA for any commercial use or the creation of derivatives. For inquires, please contact: info@issva.org.
For citations please use: ISSVA Classification of Vascular Anomalies ©2025 International Society for the Study of Vascular Anomalies Available at "issva.org/classification" Accessed [date]
Issue Reporting
Please contact ISSVA at info@issva.org in case you have any issues and/or feature requests for the ISSVA Classification System.
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ISSVA Members Receive Free Article Publication Fees Through 2025!
JoVA is now indexed in the Directory of Open Access Journals (DOAJ): and moving towards Pubmed Central indexing.
Follow JoVA on X: @JOVAJournal
We invite you to read some of JoVA's most recent publications:
ISSVA 2025 Classification
- Updated Classification of Vascular Anomalies. A living document from the International Society for the Study of Vascular Anomalies Classification Group
Goldenberg, Dov; Vikkula, Miikka; Penington, Anthony; Blei, Francine; Schultze Kool, Leo; Wassef, Michel; Frieden, Ilona J.; ISSVA Vascular Anomalies Classification Group
ISSVA 2024 World Congress Meeting Abstracts
Clinical Study
- The Use of Biodegradable Temporizing Matrix in Reconstruction Postvascular Anomaly Excision in the Pediatric Patient
Shilova, Maria; Choy, Kay T.; Das Gupta, Romi; Stefanutti, Giorgio; Storey, Kristen; Griffin, Bronwyn; Rashid, Mudassir; Kimble, Roy M. - Trend in the Use of Pain Modalities in Patients with Vascular Anomalies
Yi, Avalon; Linn, Jaimie; Ochmanek, Emily; Fabre, Anna; Yang, MingAn; Smidt, Aimee C.
Case Report
- Novel NRAS Mutation in a Lobular Capillary Hemangioma of the Temporal Bone in a Child
Andreoli, Steven M.; Horlbeck, Drew M.; Saad, Ali G.
Call for Papers
The Editorial staff of JOVA is issuing a Call for Papers. This peer reviewed, open access journal is dedicated to the discovery and report of the scientific investigation, diagnosis, and treatment of congenital and acquired human vascular lesions. JOVA is indexed in the Directory of Open Access Journals (DOAJ) and is available worldwide on Ovid®. Some manuscripts already have PubMed IDs.
We are accepting the following article types:
- Original Scientific Research (molecular, genetic, histologic)
- Original Clinical Studies (prospective, retrospective, case series)
- Contemporary Reviews
- Evidence based Reviews
- How I do it
- Case Reports
- Letter to the Editor
Submit today to ISSVA’s journal dedicated to Vascular Anomalies. Expedited review and publication!
Don't forget to renew your membership for 2025!
Your membership may have expired on 31 January if you have not yet renewed. Continue to receive ISSVA updates and have access to ISSVA member benefits by renewing today!
If you prefer to renew with a written invoice, please reach out to us at info@issva.org or you can renew online on the ISSVA website.
Message Boards: Read the latest messages or start a conversation online with other members - ISSVA Message Boards.
Social Media: Follow ISSVA on Twitter @ISSVA_org and LinkedIn.
World of Vascular Anomalies
ISSVA believes it's important to unite the vascular anomalies community so we share with you, our members, the below events and changes in the field that are not organized or associated with ISSVA, but may be of interest to you. Please note that the events and news items listed below do not indicate an endorsement or sponsorship of these events by ISSVA.
4th Annual CHOP Lymphatic Disorder Conference
Join us at the Lymphatic System Learning Conference, where healthcare professionals from various disciplines gather to deepen their understanding of the body's often overlooked but crucial lymphatic system. Through engaging presentations, interactive workshops, and collaborative discussions, participants will explore the anatomy, physiology, disorders, and treatment modalities related to the lymphatic system. From cutting-edge research to practical hands-on techniques, attendees will gain valuable insights and skills to enhance patient care and improve outcomes. Don't miss this opportunity to connect with experts, expand your knowledge, and advance your practice in lymphatic health.
You can find more information about this opportunity here.
To have your event or news item featured in this section of the newsletter, email info@issva.org.
ISSVA World Congress 2026
The ISSVA World Congress 2026: The Latest in Vascular Anomalies website is active and we're updating it as we get more information. Reach out to info@issva.org if you have questions about the meeting.
Are we missing any meetings or items of interest?
If you are aware of an upcoming educational opportunity, meeting or other item of interest that should be included, please let us know at info@issva.org so we can review the item and, if appropriate, share it with our membership in our next newsletter.