September 2018

International Society for the Study of Vascular Anomalies
Newsletter Vol 2 - No 1 | September 2018


President’s Message

Dear Friends & Colleagues,

I attended my first ISSVA Workshop in 1992 in Denver, Colorado, hosted by Wayne Yakes. My recollection (vague because it was 26 years ago) is that there were 40 to 50 people in attendance, and perhaps 20 to 30 abstracts presented. The big thrills for me? Meeting John Mulliken (I had just read the first edition of his textbook and was so impressed) and meeting Odile Enjolras – both for the first time. Odile was the only other dermatologist at the meeting(!) but I knew her through her writings and was excited to meet her. She became a mentor, role model, and great friend. Those of us who were fortunate enough to know her still miss her formidable intellect and gentle presence. I didn’t know it at the time, but that meeting was also President-Elect Josée Dubois’s first ISSVA meeting!

Fast forward to 2018. The World of vascular anomalies has grown dramatically. The workshop this year had 748 attendees, 112 oral presentations and 218 posters. We are more international than ever, with 50 countries represented at the meeting. It was heartening to learn that a large number were attending an ISSVA Workshop for the very first time. Putting together this meeting was a huge endeavor, and we are so grateful to the local hosts, Leo Schultze Kool, Chantel van der Horst, and their colleagues – and to the scientific committee headed by Francine Blei, for their hard work in selecting and organizing the scientific content.

These are exciting times for ISSVA. We are no longer a small society. We now have 353 members, with many membership applications pending. We have a professional administrator, Justin Dodge, who is doing a great job of helping us with day-to-day organizational work and planning strategic initiatives. Among those strategic initiatives (which you will be hearing more about) are plans to hold an annual meeting beginning in 2021, strong consideration for establishing an International Journal of Vascular Anomalies, and hosting educational Webinars on selected topics.
I am honored and excited to be taking on the role of President of ISSVA for the next two years, and I promise to work with the excellent Board of Directors and all of you to continue our trajectory as a vibrant, important international organization dedicated to vascular anomalies.

Ilona J. Frieden, MD

Download the Newsletter in PDF! 


Let Your Voice be Heard

To better understand your interests and needs, ISSVA e-mailed you a short survey last week, which includes questions about you, your vascular anomalies team, the ISSVA Newsletter, journals in the field of vascular anomalies, and the 2022 ISSVA Workshop.

We estimate this survey will take no longer than five minutes to complete and we would appreciate your feedback so we can continue to provide you with the services that are of highest importance to you. If you have not already done so, we'd like to encourage you to Complete the Membership Survey.

2018-2020 ISSVA Board of Directors

 Ilona Frieden
President Elect
 Josée Dubois
Past President 
Laurence M Boon
Vice President 
Tony Penington
Gresham Richter
 Juan-Carlos Lopez-Gutierrez
Scientific Committee Chair 
Francine Blei
Member at Large
 Denise Adams
Member at Large
 Michel Wassef

Congratulations to New ISSVA Members

We extend a very warm welcome to the new members of ISSVA, who were elected by the ISSVA General Assembly on 30 May, 2018 in Amsterdam, the Netherlands.

You can view the complete List of New ISSVA Members.

ISSVA 2018 (Amsterdam)

The ISSVA 2018 meeting was a great success and boasted a record attendance of 748 delegates! Photos from ISSVA 2018 are available online!

We also invite you to review the ISSVA 2018 Final Program and Abstract Book

Presenters are in bold


Mosaic RAS/MAPK variants cause sporadic vascular malformations which respond to targeted therapy
 *This is a multi-national paper with authors from various countries (UK, US, Canada)

Satyamaanasa Polubothu (University College London); Mary Glover; Lara Al-Olabi; Katherine Dowsett; Katrina Andrews; Paulina Stadnik; Agnel P Joseph; Rachel Knox; Alan Pittman; Graeme Clark; William Baird; Neil Bulstrode; Kristiana Gordon; Darren Hargrave; Sue Huson; Thomas Jacques; Gregory James; Hannah Kondolf; Loshan Kangesu; Kim Keppler-noreuil; Amjad Khan; Marjorie Lindhurst; Mark Lipson; Sahar Mansour; Justine O'hara; Caroline Mahon; Anda Mosica; Celia Moss; Aditi Murthy; Juling Ong; Victoria Parker; Jean-baptiste Riviere; Julie Sapp; Neil Sebire; Rahul Shah; Branavan Sivakumar; Anna Thomas; Alex Virasami; Regula Waelchli; Zhiqiang Zeng; Leslie G Biescker; Alex Barnacle; Maja Topf; Robert Semple; Elizabeth Patton; Veronica Kinsler.


Lymphatic malformations treated by venous anastomosis technique based on flow assessment 

Motoi Kato (Saitama Children's Medical Center); Shoji Watanabe; Azusa Watanabe


Intrinsic Lymphatic Endothelial Cell Defects: A Contributor to Secondary Chylothorax Development in Pediatric Congenital Cardiac Anomaly Patients

Aqsa Shakoor (Columbia University); Christopher Kitajewski; Michael Schonnin; Ajit Muley; Rozelle Corda; Sophia Chrisomalis-Dring; Paul Chai; June Wu; Carrie Shawber


Be sure to mark your calendar for the ISSVA 2020 Workshop in Vancouver, BC, Canada. As details are released they will be posted on the ISSVA website, the newsletter and through ISSVA’s social media channels.

Visit the ISSVA 2020 (Vancouver) Website

New! Annual ISSVA Meetings:

The ISSVA Board of Directors has decided to transition to an annual meeting beginning in 2020. The biennial Workshop will remain as is, while the format of the alternate-year meetings will be announced at a later time.


In keeping with the ISSVA policy, and with the approval of its Board of Directors, we announce the following meetings. This does not indicate an endorsement or sponsorship of these meetings:

27-29 September, 2018
Trento, Italy

Italian Society of Vascular Anomalies (SISAV)
Notes: The official language of this meeting is Italian; two keynote lectures will be presented in English

28-29 September, 2018
Atlanta, Georgia, USA

Medical, Surgical, and Minimally Invasive Management of Vascular Anomalies and Overgrowth Syndromes Conference
Children’s Healthcare of Atlanta

26-27 October, 2018
A Coruña, Spain

10th Annual Meeting of the Spanish Society of Vascular Anomalies: Intensive Course on Lymphatic Malformations & General Course with “New Genes”

16 November, 2018
Madrid, Spain

International Master of Phlebology and Lymphology

18-19 May, 2019
New York, NY, USA

Controversies in Vascular Anomalies

For those interested in participating in the literature review, please send your name to ISSVA Scientific Committee Chair, Dr. Francine Blei at:

For those interested in participating in the classification committee, please send your name to Prof. Michel Wassef at:

For those interested in participating in the editorial board, please send your name to the President, Iona Frieden, at: