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International Society for the
Study of Vascular Anomalies

Privacy Notice

Privacy Notice


ISSVA is committed to protecting your personal privacy and takes all reasonable care to prevent unauthorized access to your personal data. This notice governs all aspects of ISSVA, including ISSVA services, membership and all web pages hosted by ISSVA. It does not apply to pages hosted by other organizations, including member websites, which have their own privacy policies. This notice may be amended at any time.

Why your personal information is collected and how it is used
Select personal information is needed by ISSVA to enable us to properly manage our member and customer files. These files are used to enable ISSVA to fulfil our role of providing a wide range of services to our members, contributors, volunteers, and customers including, but not limited to, providing services that you request, communicating information that may be considered of interest to you, processing applications, managing meeting registration, or to better understand how our websites and services are used so we may improve these member and customer offerings.

What personal information is collected
The type and amount of information received and stored by ISSVA depends on how you use the website and ISSVA’s other services. ISSVA does not collect information identifying you personally (such as your name, address, phone number or e-mail address) unless that information is voluntarily disclosed, such as in the case of membership applications, registering for a meeting, submitting an abstract, or otherwise providing this information to ISSVA. You can access most ISSVA webpages without stating who you are and without revealing any personal information.

Required Personal Information

The following minimum information must be provided in order for your membership application, meeting registration, abstract submission, etc. to be processed: First Name, Last Name, and Email Address. These details are needed to properly identify you, to communicate with you, to provide you with the products and services you have requested and to ensure that items are properly labelled as yours (example: congress badges and scientific contributions such as abstracts and presentations, etc.).

For select ISSVA services, additional personal information may be required. This additional required personal information may include, but is not limited to, your postal address or country of residence and student ID card for meeting registration; your educational degree(s), Curriculum Vitae (CV), and list of publications for membership applications; and your professional affiliation for abstract submission.

Optional Personal Information

To provide our members with improved service, additional personal information is requested, but not required, including, but not limited to: institution name and website, position title, phone number, fax number, home address, specialty, preferred e-mail subscriptions, date of birth, etc.

Email address

Electronic communication is for most purposes ISSVA’s preferred method of communication because it is generally convenient, rapid, effective and efficient. Your email address is needed because it is used as part of the login information to access the “Members Center” on the ISSVA website and allows ISSVA to be able to communicate with you directly. Additionally, because ISSVA only permits a particular email to be used once in our system, it reduces the possibility of duplicates and it permits “Login Help” to be handled in an automated and secure way.

ISSVA respects the privacy of personal email addresses and complies with all known current legislation on email communication. You may specify your preferred communications from ISSVA via your “User Profile > Professional tab” in the “Members Center” or by informing ISSVA of your preferences via e-mail at:

How your personal information is collected

To fulfil member and customer requests and services, ISSVA collects personal information in a number of ways from a number of sources. This information may be provided to ISSVA on paper forms, fax, electronically through the ISSVA website or ISSVA’s other online services (including the “Members Center”), or through other electronic forms made available through partner platforms and websites, such as meeting registration or submission of an abstract. The sources of personal information received by ISSVA are:

  • The individuals themselves
  • Third parties acting on behalf of individuals (example: an assistant or agent arranging registration or hotel accommodation for an ISSVA meeting or event)

With whom your personal information is shared
ISSVA does not distribute, sell or rent personal information to others, except with your prior permission, where required by law, or to supply your information to ISSVA’s contractors to perform specific services. In this context, your personal data may be disclosed to third party vendors who manage ISSVA’s meeting registration, abstract management system, speaker management system, hotel bookings, etc.

How long your personal information is kept
Personal information is kept for a reasonable period of time, and may be stored indefinitely, dependent upon the nature of the information and its intended use.

If you are an ISSVA Member or past member, your information will be kept in the ISSVA system indefinitely, even if you do not use ISSVA products or services during that time, unless you request us not to keep it, in which case your membership with ISSVA will cease and your historic records will no longer be accessible.

How you can access, update or delete your personal information
You have the right to access, amend, oppose the use of, or protest collection of your personal data. If you change your e-mail address, discover inaccurate information, or wish to unsubscribe, those with an online account may access and update this information on your “User Profile > Professional tab” in the “Members Center”. For those who would like to file a complaint, for individuals without an online account, or for those members who prefer, you may e-mail a message to to address these items.

How your personal information is treated and data security
ISSVA ensures to the best of its ability that any personal information provided to ISSVA is secure on its systems. However, it cannot guarantee that submitting information over the Internet is 100% secure. As a result, ISSVA does not confirm or warrant the security of personal information submitted; you do so at your own risk.

Membership Directory

Current ISSVA members' contact information is made available through the Membership Directory. This information is only available to other current ISSVA members. Members may opt out of being listed in the Membership Directory by contacting ISSVA at


Like many other websites, the ISSVA website and sub-sites use cookies in order to provide you with a more personalized web experience.

A cookie is a text-only string of information that is created and stored on your computer by your browser. It contains information about your visit that your browser uses to personalize certain pages or elements. For statistical analysis purposes, a cookie may also be used to pass a randomly generated and anonymous unique number to our servers. Cookies cannot be used by themselves to identify you. A cookie will typically contain the name of the domain from which the cookie has come, the "lifetime" of the cookie, and a value, usually a text value or a randomly generated unique number.

If you do not wish to receive cookies, you can easily modify your browser to reject all cookies or to notify you whenever one is about to be placed on your computer. However, if cookies are not accepted you may not be able to use all the interactive features of the ISSVA website.

Automatically collected information

Log files

Most standard web servers, including ISSVA’s, use log files, which record information such as:

  • service provider IP addresses;
  • browser versions;
  • referring web sites;
  • search terms used;
  • average number of pages requested;
  • average duration of visit;
  • total visitor traffic;
  • information gathered for aggregate use.

Google Analytics
Currently ISSVA uses Google Analytics to analyze the audience of the website and improve our content. All data is being collected in anonymized form for the purpose of analyzing traffic to our website and plan updates and improvements according to actual usage. The collected data is transmitted to, stored and analyzed on Google Analytics servers. No personally identifying information is collected from Google Analytics.

You may opt out of Google Analytics using the official instructions or you can access their own Privacy Notice, which can be found on their website here.

Protecting Children

The website is not intended for people under 16 years of age. ISSVA does not knowingly collect personally identifiable information from people under 16. If you are under 16, do not use or provide any information on the Website or provide any information about yourself to us, including your name, telephone number, email address or any screen name or user name you may use. If we learn we have collected or received personally identifiable information from a person under 16 without verification of parental consent, we will delete that information. If you believe we might have any information from or about a person under 16, please contact us at

Governing Law

This Privacy Notice and any disputes related thereto shall be governed by and construed in accordance with the laws of the State of Wisconsin, exclusive of its choice of law rules.


This site contains hypertext links to other sites. ISSVA is not responsible for any third-party content or privacy practices accessible through this website. We do not endorse any of the companies or opinions listed in or linked to or from the website. Our website also does not host any form of advertisement.

Last updated: October 22, 2018